Myeloma and Me. One year on

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Phil
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As some of you may remember I mentioned on the previous forum about my Myeloma diagnosis so one year on here's an update.

First though a resumé.

I had been suffering for a long time with extreme fatigue and couldn't walk more than a few yards without having to stop for a rest. I was sent to an Haematologist, Mr Pemberton at Kidderminster, on October 6th and it was then that I went through loads of tests to determine the cause. Bloods, MRI, X Rays, Heart, Lungs etc.

On November 3rd 2023 I was told that I had Myeloma. Myeloma is a blood cancer that is incurable but treatable with loads of drugs.


I take 11 different drugs a day multiple times and now I'm feeling much better.

Compared to a year ago I can now, sometimes, walk a mile or so without feeling too bad. I sometimes have a problem with the top of my thighs where the lesions are but that's manageable.

My sleep is getting better too and I'm no longer walking round the house at 3 in the morning so all told I'm doing well. This won't last forever though and eventually the drugs don't work and I then have to go onto stronger drugs.

I just have to hope that is still someway off.

So there we go. The annual report from me.

The link: https://www.myeloma.org.uk/
Brumkidd Again
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So pleased that you are managing the condition so well. Keep taking the tablets!!
harriershane
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Just seen this Phil - a year already!? I remember the day well when we met outside the ground and you told me the news. Fantastic news that you seem to be doing well all things considered
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Phil
The Gaffer
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Joined: Sun Sep 22, 2024 10:25 am
Location: Africa. I can hear Lions and Tigers
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An update:

Things don't look so positive now. More and more I'm getting extreme bone pain in my legs, back and ribs but this is normal with the chemo drugs I take.

I'm now using a walking stick (when I have to) mainly to support the left side of my body due to a bit of wobbliness and to relieve the pain in holding my body upright. The pain is relentless and as soon as one area improves another area takes over.

They're waiting in ambush.

Hopefully this phase will go now the summers coming.
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